Have your say…for a few more weeks

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Leslie Williams

You’ve got a (small) opportunity to fill in a survey about palliative care in NSW, until December 15, this year (2017).

The NSW government has promised to spend an extra $100 million over the next four years for community-based palliative care services, on top of the money it already spends.

“We are listening carefully to the community’s views on where and how palliative care services can be improved so that we have a strong plan for the future,” said Port Macquarie MP and NSW Parliamentary Secretary for Regional and Rural Health, Leslie Williams.

Mrs Williams has promised answers from the survey and feedback from community consultation done earlier this year will inform a new palliative and end-of-life care policy in NSW.

“Getting the public’s feedback on palliative care priorities is vital if we are to produce better outcomes for everyone when the inevitable occurs. The survey will only take about 10 minutes so I strongly urge everyone to take this opportunity to have their say,” Mrs Williams said.

To add your two bob’s worth, go to www.health.nsw.gov.au/palliativecare

 

Now that the funeral is over

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Margaret Rice Good Grief and Doris Zagdanski My Grief Assist

Introducing Doris Zagdanski, who works with one of the largest funeral providers in Australia. She is also the author of many books about grief.

Doris is currently giving a lot of thought to that most difficult of times – when the funeral is over.

“After the funeral we shut the door and everyone’s life is supposed to go back to normal. But it often doesn’t. That’s when grieving people often need the most support, when the busyness of the funeral is over and they’re left on their own.

“How can we make that better? It’s a challenge for all of us.”

Doris has started a webpage called My Grief Assist.  https://www.mygriefassist.com.au/

She is also author of the book “Now that the Funeral is Over – the common sense guide for grieving people.” (First published in 1993, to be reprinted in 2018)

Doris’s other books are:

Something I’ve Never Felt Before

Stuck for Words: What to say to someone who is grieving

What’s Dead Mean? How to help children cope with death

When Pets Die: It’s alright to grieve

Teenagers and Grief.

 

The Kiwi Coffin Club

Love the way these baby-boomers are rethinking the end, turning old ideas on their head, the way they always have – while making friends and tap-dancing.

Thanks to my dear friend, writer Katie Delaney, for sharing this.

Grief can last forever can’t it?

Facilitated a discussion tonight about grief, with the Funeral Celebrants Association of Australia.

We challenged our culture’s notions about how long you’re allowed to grieve for: “Grief can last forever can’t it?” suggested Judy.

Some shared stories about bad deaths. This included a chilling story about a death certificate being signed by someone who couldn’t look at the person they were ‘signing off’ – or the grieving step-father and his family.

But there were plenty of sunshine moments too, as the celebrants present shared stories from their personal experiences. Some were excited about the eulogies they’ve helped write. Others gave tips on the ways to find something positive to express when someone dies who is unloved.

We asked some big questions and lingered over little ones…as we enjoyed spring rolls, salt and pepper calamari and a fresh salad.

Thank you for having me folks, and for allowing me to be the touchstone for an important conversation.

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With funeral celebrants, Sharon Swinbourne, Judy Pryor and Isla Tooth

The fig tree

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Troubled stories from recent deathbeds remind me of a sign at my daughters’ old school: “Beware falling pods!” The sign sat at the base of an enormous native fig tree and when those pods fell, they were like malevolent missiles. Dropping from a great height helped the pods to crack open (along with trampling by school shoes) to reveal their large seeds. Maybe families are like those trees. They grow large and strong and when an elderly parent is dying it’s a very common time for conflict and tension within families to erupt – whether over management of care, how the person’s wishes should be respected or the inheritance of important items from their life, like a ring or a chair. So it’s a time we need the “Beware falling pods!” sign. The pods hurt when they hit, but their forceful drop to shatter open, although unpleasant, is part of the life story of the tree.

Wow! Would you dare host one of these dinners?

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Photo by Amanda Ringstad

I’m wondering: would I be game enough to host one of these dinners? My family are coming over for dinner tonight…..

Thanks Susie P. for letting me know about this fascinating conversation starter.

http://deathoverdinner.org.au/

 

 

 

Author Leah Kaminsky shares her insights

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Leah Kaminsky  (photo by Nicola Bernardi)

When I first started writing my book We’re All Going To Die there weren’t many public conversations on the subject of death, but since then it has really moved along. Sadly, however, it hasn’t moved fast enough. 

I’d like to see death education brought more widely into medical schools, for it to become part of every discussion, such as ethics, and how to communicate with patients, pretty much the same way sex education opened up and was being covered when I was a medical student.

This has happened rather effectively in other countries, such as the USA, with the introduction of ‘medical humanities’ subjects to students – but unfortunately, it hasn’t really taken off in Australia.

If this discussion around death was improved, I think it would really change things. There would be a really good platform for not just doctors but all health professionals, such as nurses or physiotherapists, who day in and day out support the dying.

Currently, there’s no formal debriefing mechanism for doctors and health care specialists. Of course we talk to each other and tell black jokes in the tearoom, but it’s not the same thing. Without more formal support, health professionals carry the impact of their interactions with death in a way that inevitably leads to ‘zooming out’ and a risk of burn-out or compassion fatigue.

Just this week I had to tell a patient, a young man with two small children who was doing well in his career, that he was completely riddled with an inoperable, terminal cancer, that the next thing he should do was go home and get his affairs in order. That’s a really difficult thing to have to tell someone but there is no formal, easily accessible debriefing mechanism for the doctors who must have those sorts of conversations, within our current medical facilities.

I hope this changes in the near future, because if it does, then we in the medical profession will be stronger and better equipped to give a much better quality of support to those experiencing the realities of mortality, either as someone dying, their carers or those who are grieving.

http://www.harpercollins.com.au/9781460749999/#sm.0000wmev8914pnecjwibvqqz696s7

Kaminsky book cover